Week 370 “A Photo to share”

The nights and days are very long . I keep finding my self thinking what Jill and I did at this time – breakfast in bed, showers,makeup in the kitchen and off course the coffee . I find my self making coffee about the times that match. I have also find myself thinking of all the what  ifs. We had out disagreements even up until the last but there was always the kiss and it was forgotten. and I can’t ask her to forgive me anymore.

The friendship from the MSA community and our friends have been amazing,  the comments on Facebook , Cards, emails and flowers mean so much to my family and myself. Yesterday I had a phone call and a visit from Jill’s physio we sat and ate lunch , had a cappuccino , we talked about Jill and remembered all those sessions. It always amazed me when asked if she would like to do a walk or some squats – walk off course was always the answer and with me bringing up the rear Bec would escort her the full length of the passage and back sometimes – but the answer was alway yes – more exercise.

My memories of Jill in better times.

My memories of Jill in better times.

The photo we used on the booklet handed out at the service which I put on the blog was  taken in 2008 and I decided that I had to have it on permanent display. On  Tuesday I ordered one for each member of the Family and they were all delivered on Thursday – fantastic effort Snap Print . Mine is on display with Riley’s photo – which Jill loved.

When we went to China in 2006 Allison came over in the second week and she brought a present for Jill with her – An Angel of Hope – Jill has had that with her since that time looking down on her. During the service Allison placed it on her mum’s coffin and after the service it was placed in the coffin to look after her as she made the next part of her journey. We decided to purchase Angels for each member of our small but close family. That sounded easy – but they went out of production in 2010. Thanks to Ebay we were able to locate the number required – One from this supplier , three from another and so on. Most have arrived only a couple to come. This will be our MSA Angel of Hope.

 

 

As part of the service Allison recited the following poem

Poem for Hope by Catherine Pulsifer

As long as we have hope, we have direction, the energy to move, and the map to move by.

We have a hundred alternatives, a thousand paths and infinity of dreams.

Hopeful, we are halfway to where we want to go; Hopeless, we are lost forever.

Hope is the anticipation of an event or an occurrence.

Our own individual hopes are our own desires,or could be considered our wish for the future.

Hope can give us a feeling of optimism when we are feeling discouraged.

As Diogenes once said, “Hope is the dream of a waking man.”

Hope is one of the prime differences between successful people and those who can only see failure.

Successful people have hope because they can clearly see their goals.

People who only see failure have no hope because they see no light,they set no goals, and they see nothing accomplished.

Successful people see alternatives and are willing to try different ways.People who only see failure are unable to see another way and give up to easily.

With hope you are halfway to where you want to go; by setting your goals, and taking the action to achieve them,you will see your hope turn into your reality!

This poem and the MSA song used also in the service I Have A Dream by Wayne Brennan were written for Jill and all the other MSA Angels

I started writing this blog several days ago and have found it hard to complete – I miss Jill so much and just want to tell her once again how much I love her and  that she will always be in my heart.

See you on the net – and I will bring Jill with me where ever I am.

 

 

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One Response to Week 370 “A Photo to share”

  1. Jessica Goh says:

    Hi Mac,

    I’m lost with words and very sad to read your blog today. My deepest condolence and I know you and Jill will always be strong.

    Can’t thanks you and Jill enough for sharing your experiences and it has always give me new hope and encouragement by reading your blog.

    With your guidance we did make the trip to Beike in Guangzhou in Jan 2012 with improvement in his MSA conditions. We had a great time and my hubby can actually stand up from his wheelchair and walk on his own for quite a distant with the help of a walking frame after the stemcell treatment. We were full of hope then!

    I’m ashamed to update you after our return as instead of fighting against MSA, I’m now fighting for his brain damage. He was up and down, in and out of hospital for breathlessness, urine infection etc after our return to Singapore. On 17th Oct 2012, he was admitted for breathlessness due to accumulation of phlegm. Sad to say, our local hospital base on their knowledge of MSA conclude that he is in his terminal stage and never give him any hope for his recovery right from the beginning of their diagnose. On 28th Oct 2012, when he was breathless for more than 2 hours, they actually refuse to do anything till he collapse in my arms then they decided to save him. Though stabilize, he is now in a vegetative state and I can only pray for miracles.

    I’m exhausted in all my escalation since the day his brain being damage and my last resort is to go for online petition.

    God bless you and your family!

    Warmest Rgds/Jessica

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