Monthly Archives: August 2012

On Thursday 23rd we were advised that there was a bed available in the Thomas Hogan Rehab ward for Jill to undertake some intensive exercise with the aim of getting Jill back on her feet and be able to do … Continue reading →

Please be sure you are registered to receive updates of new clinical studies for Multiple System Atrophy from the Autonomic Disorders Consortium (ADC) website. I was just  received an email from the ADC today that study number 6103 Norepinephrine Transporter … Continue reading →

Hello All, I wish that we could attend The details for MSA conference are below.  There is a Register online link. If  you plan to attend the conference could you please fill it out. This is for everyone that is going … Continue reading →

We decided that our blog needed an update- with Riley now sleeping in a big boy bed and the impending arrival of his brother/sister on Jan 2 2013 it was time for a change. While Chris was here last weekend … Continue reading →

We went up for the x-rays and T was allowed to watch from the booth as they x-rayed Jill’s leg and I watched as they appeared on the monitor screen, they certainly looked better than the ones I saw when … Continue reading →

A couple of weeks at home and we are starting to get used the new normal routine. Starting around 7.30am we have breakfast and if we can do some bed exercises from 8-9 then the PCA (personal care attendant) arrives … Continue reading →